tag:blogger.com,1999:blog-5055690623124333963.post574950953165404821..comments2024-03-22T03:59:57.789-04:00Comments on Isaiah's Kawasaki Disease Journey: No such thing as too much informationCarin http://www.blogger.com/profile/05933271022542831778noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-5055690623124333963.post-29310143259522384092013-04-29T01:04:35.367-04:002013-04-29T01:04:35.367-04:00Thanks for sharing, Adrienne. I am so sorry to he...Thanks for sharing, Adrienne. I am so sorry to hear that your daughter is going through so much right now. I can only imagine how frustrating that must be. Please don't give up hope. With you by her side your daughter will be fine -- I can tell that you will make sure of that! I wish you and your daughter all the best. <br /><br />Take care,<br />CarinCarin https://www.blogger.com/profile/05933271022542831778noreply@blogger.comtag:blogger.com,1999:blog-5055690623124333963.post-2808311646874068622013-04-29T01:01:04.624-04:002013-04-29T01:01:04.624-04:00Thanks, Leah. That means a lot coming from you!
...Thanks, Leah. That means a lot coming from you!<br /><br />CarinCarin https://www.blogger.com/profile/05933271022542831778noreply@blogger.comtag:blogger.com,1999:blog-5055690623124333963.post-87973095956679866082013-04-29T01:00:37.503-04:002013-04-29T01:00:37.503-04:00Thanks for your comment, Kristin. So many KD pare...Thanks for your comment, Kristin. So many KD parents are in the same position as you. I think the most frustrating part of KD is that there are so many unknowns. Hopefully, more answers will be found over time. Hope your little guy is doing well.<br /><br />CarinCarin https://www.blogger.com/profile/05933271022542831778noreply@blogger.comtag:blogger.com,1999:blog-5055690623124333963.post-49396889025913527252013-04-27T00:12:40.688-04:002013-04-27T00:12:40.688-04:00You're right, I'm here hoping to glean som...You're right, I'm here hoping to glean some more information but I really did get that last part personally. We had the KD diagnosis very early but now keep returning to doctors about my daughters multiple skin issues and multiple inflamed organs. If I have to hear that it could be a virus, an allergy, KD effects or a completely new auto immune disease again (gee, thanks for narrowing the possibilities) I think I'll actually stamp my feet and cry with frustration! If I have to listen to them dismiss certain symptoms because they don't think they're relevant, or listen as they say that she doesn't seem too uncomfortable (she's similar to Isaiah in that she tolerates pain and procedures very well) again, then I'm afraid of either becoming disheartened or go the opposite way and turn into a raving lunatic! Anyway, thanks for this article. It's so comforting to share in a journey with so many like minded parents & families! Good luck xoAnonymoushttps://www.blogger.com/profile/08591479874114512839noreply@blogger.comtag:blogger.com,1999:blog-5055690623124333963.post-72568822265882697202013-04-26T12:47:11.612-04:002013-04-26T12:47:11.612-04:00Wonderful advice here! I keep you and your little ...Wonderful advice here! I keep you and your little fighter in my thoughts. ldrhttps://www.blogger.com/profile/11120727131981147945noreply@blogger.comtag:blogger.com,1999:blog-5055690623124333963.post-69988912464981672082013-04-26T12:22:55.700-04:002013-04-26T12:22:55.700-04:00Thank you for this!!! Everyday I still am looking,...Thank you for this!!! Everyday I still am looking, researching yet still so many unanswered questions and concerns. I am so glad he is doing better.<br />XO<br />kristinKristin @ My Uncommon Slice of Suburbiahttps://www.blogger.com/profile/01582699662612999806noreply@blogger.com