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Showing posts from February, 2012

Finding a new normal

I sometimes wonder if people imagine Isaiah as lying in a bed somewhere, looking very ill.  The truth is, he looks and acts like any healthy 3 year old.  Looking at him, you would never know that there is anything wrong with his health.  That is until you roll up his sleeves and see his arms or take a look at his thighs. The bruises left by his twice daily enoxaparin injections are the only visible signs of his condition.  There are times when I actually forget that Isaiah has any aneurysms, only to be reminded by the alarm going off, indicating that it's time for me to give him one of his many medications.

I think one of the few blessings in all of this is that Isaiah is young enough that he has quickly adapted to this new way of life and will probably not remember what life was like before he had Kawasaki disease.  He knows each morning and each night, that he will receive his shot.  He has even begun to ask if it is the leg or the arm today.  He still comes over dutifully to re…

With gratitude and thanks

I have written much about the trials we have gone through during Isaiah's illness and subsequent discovery of his aneurysms.  However, I would be remiss if I did not mention that we have definitely not gone through all of this alone.  From the the first day that Isaiah was hospitalized, up until today, I have been so touched by the number of people that have shown concern for my little guy.  It may sound completely cliché, but it is times like these that I am so grateful to be surrounded by such wonderful friends and family.  I mean that with all sincerity.

During Isaiah's stay in the hospital our families were very supportive. Mike's family continuously offered their help.  My parents, uncle, brother and his wife not only helped to care for Noah, but also cared for Mike and I as well -- bringing us food to eat when we did our shifts at the hospital, running errands and just making sure we had what we needed to make it through those long days and nights.  I don't…