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Showing posts from July, 2012

1st Kawasaki Disease Parent Symposium in San Jose, CA

I have been asked to spread the word about a Kawasaki disease symposium that is happening in the Bay area.  It is being organized by the Kawasaki Disease Foundation, a US non-profit organization dedicated to Kawasaki disease issues.  The event will be hosted by KD specialists from Seattle,  WA.  This is a wonderful opportunity to have your questions answered by two of the leading physicians in the field and meet other parents who have been affected by Kawasaki disease.

Following is the basic info:

When: Saturday, August 25, 2012 from 1-4 P.M.

Where: Good Samaritan Hospital Auditorium
2425 Samaritan Drive
San Jose, CA 95124
(408) 559-2011

Join KD specialist, Sadeep Shrestha: Assistant Professor, Department of Epidemiology, School of Public Health, University of Alabama-Birmingham, Birmingham, AL, who will be talking about the Genetics of Kawasaki Disease.

And Dr Michael Portman: Professor, Attending Cardiologist and Director of Cardiology Research at Seattle Children’s Hospital, wh…

No news is good news

It's been quite awhile since my last post.  There seemed to be nothing new to report regarding Isaiah's health, or perhaps I was just avoiding composing a post, as it would force me to think about Isaiah's heart problems.  In between check ups I find myself almost forgetting how serious his medical problems are.  We have fallen into so much of a routine of administering his shots and his oral medications, that they no longer serve as strong reminders of his situation.  However, as the date for his echocardiogram check up came closer and closer, I found myself thinking about Isaiah's aneurysms more and more and my anxiety level steadily increased.  A few days before his echo, I was watching a KD-related video online and ended up in tears.  The little boy in the video had suffered from KD, but despite a large delay in receiving treatment, he was fortunate enough not to end up with any long term effects.  Photos of the boy brought me back to the awful days of Isaiah's…