Skip to main content

1st Kawasaki Disease Parent Symposium in San Jose, CA

I have been asked to spread the word about a Kawasaki disease symposium that is happening in the Bay area.  It is being organized by the Kawasaki Disease Foundation, a US non-profit organization dedicated to Kawasaki disease issues.  The event will be hosted by KD specialists from Seattle,  WA.  This is a wonderful opportunity to have your questions answered by two of the leading physicians in the field and meet other parents who have been affected by Kawasaki disease.

Following is the basic info:

When: Saturday, August 25, 2012 from 1-4 P.M.

Where: Good Samaritan Hospital Auditorium
2425 Samaritan Drive
San Jose, CA 95124
(408) 559-2011

What: 
Join KD specialist, Sadeep Shrestha: Assistant Professor, Department of Epidemiology, School of Public Health, University of Alabama-Birmingham, Birmingham, AL, who will be talking about the Genetics of Kawasaki Disease.

And Dr Michael Portman: Professor, Attending Cardiologist and Director of Cardiology Research at Seattle Children’s Hospital, who will be speaking about the Paradigms of Kawasaki Disease.

Babysitting will be available.

You can register online at the Kawasaki Disease Foundation website: http://www.kdfoundation.org/index.php/component/chronoforms/?tmpl=component&chronoform=KDSymposiumSanJoseAug2012

You can also get more information on their Facebook event page.

Contact info: 

Vanessa Gutierrez
kawasakidisease2007@yahoo.com

Kate Davila
katedavila@yahoo.com

I am sure it will be a successful event and would love to hear back from any attendees about insights they gained while attending.

Comments

Popular posts from this blog

Quick update: second bout of Kawasaki disease

A new post is long overdue and it saddens me that this post was created in order to share news of Isaiah's second battle with Kawasaki disease.  Coincidentally, I have been working on a post entitled "Gratitude," which is much more uplifting. Despite the recent turn of events I plan on completing that  post, so it will be coming soon.

I will not be going into too much detail right now. I just wanted to post a quick update for those of you who have been concerned about Isaiah this past week.

Symptoms Isaiah started off with a low grade fever last week, which we assumed was just the beginning of a cold or flu. We kept him home from school, but he seemed to have lots of energy during the day and was acting very much like his normal self. He did complain of a pain in the middle of his neck, which we thought may just be a sore throat.   I took him to his pediatrician on Wednesday, but he did not note any swollen lymph nodes of redness of his throat.  He took a swab for strep …

To Whom It May Concern

To Whom It May Concern,
Hello old high school acquaintance on Facebook, who usually scrolls past me on their newsfeed.Greetings to the mom from school who knows my son has a medical condition, but is too afraid to ask me about it.Dear second cousin Judith, whose mom told her that my son was really sick, “but thank God he’s okay now.”To my neighbour up the street, to the kindergarten teacher at the school, to the mom sitting beside me at the doctor’s office and to the dad sitting beside me at swimming lessons.

This letter is written to anyone that has a child in their life that they care about.
You may have heard of something called Kawasaki disease…but probably not.Contrary to the name, it has nothing to do with motorcycles.In short, Kawasaki disease (KD) is the leading cause of acquired heart disease in children in developed countries.You may be thinking, “Acquired heart disease in children?What does that even mean?I thought kids with heart problems are born with it?”Not all cases of …

A Letter to Parents of Kawasaki Disease Heart Warriors

Dear Parent of a Kawasaki Disease Heart Warrior,

I know how you feel.  I know how scary this all is.

Maybe you have just received the news that your little (or maybe not so little) one has coronary aneurysms, because of Kawasaki disease.  What does that even mean!?  Is your child going to live with this condition for the rest of his life?  Is your child going to live to see his next birthday?

Panic may have set in, but hopefully you have calmed yourself enough to listen carefully as you receive the first set of many medical instructions that will follow.  You may be told that your child needs to start taking blood thinners right away, otherwise he may develop a clot in one of his aneurysms.  A clot in his heart?!  That can't be good.  Perhaps no one mentions the word "heart attack," but later on you may realize that this is actually what the doctor is saying without actually saying it.  Fast forward many years and your child's cardiologist may still continue to use…