Skip to main content

The little blog that could

When I first started this blog I was not sure what type of response I would get or how far its reach would be.  I have been overwhelmed by the positive feedback I have received and encouraged by the number of people that have shared my blog with others.  I have had quite a few friends tell me that my blog had been passed onto them from other friends who had no idea that they knew my personally.  The power of the internet and social media is amazing.  (In relation to this, I have created a Twitter account for the blog to make it easier for people to follow the blog.  I will be sure to tweet about any new blog posts.  You can follow us at:

I was recently contacted by a friend of a friend whose cousin's son had been hospitalized with Kawasaki disease.  When I first heard about this little boy my heart ached.  It brought back memories of Isaiah's stay at SickKids and the moments of despair and helplessness we went through. It saddened me that this little boy was going through the same ordeal as my Isaiah and that there was a possibility he may have to face the challenges that Isaiah is currently facing.  His mother contacted me by email and  thanked me "for such an inspiring story of strength, hope, and faith ~ especially during a difficult time."  I really wished that there was more I could do for her and her son, but I was thankful that I was able to at least provide some support by sharing my own personal experience and answering the few questions she had regarding Isaiah's battle with KD.

The son of one of my oldest friends was also recently hospitalized.  He was just a couple of months old and was suffering from bronchiolitis. When my friend described all the wires and tubes he was attached to I felt awful, especially because he is so young.  I wonder if the memories of Isaiah's stay at SickKids will come rushing back to me every time I hear of a child's hospitalization. It is extremely difficult to see your child suffering in the hospital, but my friend was "sucking it up" (as she put it) for her child and thanked me for being "an inspiration."

I feel so honoured that this little blog has offered some comfort and strength to families that are facing the ordeal of having a child that is in the hospital.  I am also so encouraged that the blog has been circulating and hopefully raising awareness about Kawasaki disease.  Isaiah is fighting the good fight and I am doing my best to help him win not only the battle, but also the war.

(If you are a mom/dad/aunt/uncle/other person who knows a child that you care about who is battling with Kawasaki disease and would like to learn more about my personal experience, please leave a comment and I would be happy to help you in any way that I can.  I know how scary and frustrating it can be and sometimes it helps to speak to someone that has been through the same situation.)


Popular posts from this blog

Quick update: second bout of Kawasaki disease

A new post is long overdue and it saddens me that this post was created in order to share news of Isaiah's second battle with Kawasaki disease.  Coincidentally, I have been working on a post entitled "Gratitude," which is much more uplifting. Despite the recent turn of events I plan on completing that  post, so it will be coming soon.

I will not be going into too much detail right now. I just wanted to post a quick update for those of you who have been concerned about Isaiah this past week.

Symptoms Isaiah started off with a low grade fever last week, which we assumed was just the beginning of a cold or flu. We kept him home from school, but he seemed to have lots of energy during the day and was acting very much like his normal self. He did complain of a pain in the middle of his neck, which we thought may just be a sore throat.   I took him to his pediatrician on Wednesday, but he did not note any swollen lymph nodes of redness of his throat.  He took a swab for strep …

To Whom It May Concern

To Whom It May Concern,
Hello old high school acquaintance on Facebook, who usually scrolls past me on their newsfeed.Greetings to the mom from school who knows my son has a medical condition, but is too afraid to ask me about it.Dear second cousin Judith, whose mom told her that my son was really sick, “but thank God he’s okay now.”To my neighbour up the street, to the kindergarten teacher at the school, to the mom sitting beside me at the doctor’s office and to the dad sitting beside me at swimming lessons.

This letter is written to anyone that has a child in their life that they care about.
You may have heard of something called Kawasaki disease…but probably not.Contrary to the name, it has nothing to do with motorcycles.In short, Kawasaki disease (KD) is the leading cause of acquired heart disease in children in developed countries.You may be thinking, “Acquired heart disease in children?What does that even mean?I thought kids with heart problems are born with it?”Not all cases of …

A Letter to Parents of Kawasaki Disease Heart Warriors

Dear Parent of a Kawasaki Disease Heart Warrior,

I know how you feel.  I know how scary this all is.

Maybe you have just received the news that your little (or maybe not so little) one has coronary aneurysms, because of Kawasaki disease.  What does that even mean!?  Is your child going to live with this condition for the rest of his life?  Is your child going to live to see his next birthday?

Panic may have set in, but hopefully you have calmed yourself enough to listen carefully as you receive the first set of many medical instructions that will follow.  You may be told that your child needs to start taking blood thinners right away, otherwise he may develop a clot in one of his aneurysms.  A clot in his heart?!  That can't be good.  Perhaps no one mentions the word "heart attack," but later on you may realize that this is actually what the doctor is saying without actually saying it.  Fast forward many years and your child's cardiologist may still continue to use…